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Expert Insights – Prof. Madelon Vonk, EUSTAR Treasurer
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this overview we have the privilege of introducing Prof. Madelon Vonk, EUSTAR Treasurer.She will be interviewed by Dr. Blaz Burja a member of EUSTAR YIG (Young Investigators Group).
In this short but insightful conversation, Prof. Madelon Vonk she will provide us with a unique perspectives on "Efficacy of methylprednisolone in very early systemic sclerosis: results of the "Hit hard and early'' randomized controlled trial".
About Prof. Madelon Vonk:
https://www.linkedin.com/in/madelon-vonk-10255126/
About Dr. Blaz Burja:
https://www.linkedin.com/in/blazburja/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn, the links are available above.
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series! -
Expert Insights – Prof. Prof. Maureen Mayes - University of Texas Medical School, Houston
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this overview we have the privilege of introducing Prof. Maureen Mayes, University of Texas Medical School
Houston. She will be interviewed by Dr. Virginia Berlengiero, a member of EUSTAR YIG (Young Investigators Group).
In this short but insightful conversation, Prof. Maureen Mayes will provide us with a unique perspectives on the new insights in clinical trials. We appreciate her presence and participation in this interview.
About Prof. Maureen Mayes
https://med.uth.edu/internalmedicine/2022/11/17/maureen-d-mayes-md-mph/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn, the links are available above.
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series! -
Expert Insights – Prof. Francesco Del Galdo, EUSTAR President
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this overview we have the privilege of introducing Prof Francesco Del Galdo, EUSTAR President. He will be interviewed by Dr. Joao Alexandre Oliveira a member of EUSTAR YIG (Young Investigators Group).
In this short but insightful conversation, Prof. Francesco Del Galdo will provide us with a unique perspectives on the EUSTAR initiatives for young investigators. We appreciate his presence and participation in this interview.
About Prof. Francesco Del Galdo:
https://www.linkedin.com/in/francesco-del-galdo-87a65538/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn, the links are available above.
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series! -
Expert Insights –Prof. Shervin Assassi, University of Texas Health Science Center at Houston, USA
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this interview we have the privilege of introducing Professor Shervin Assassi.
He will be interviewed by Dr. Corrado Campochiaro, EUSTAR Counsellor.
We are privileged to engage in a brief yet enlightening conversation with Professor Shervin Assassi, who shares his invaluable insights on the SENSCIS trial: key findings of this study and if peripheral blood gene expression profiling contribute to enrichment strategies in SSc-ILD clinical trials that permit MMF background treatment?
About Shervin Assassi:
https://www.linkedin.com/in/assassi-shervin-52273526/
About Corrado Campochiaro:
https://www.linkedin.com/in/corrado-campochiaro-90985711a/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn, the links are available above.
https://www.linkedin.com/company/98578058/admin/feed/posts/
https://www.linkedin.com/company/eustar-org/
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series! -
Expert Insights – Dr. Tania Santiago, EUSTAR Counsellor
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this overview we have the privilege of introducing Dr. Tania Santiago, EUSTAR Counsellor. She will be interviewed by Dr. Devis Benfaremo a member of EUSTAR YIG (Young Investigators Group).
In this short but insightful conversation, Dr. Tania Santiago will provide us with a unique perspectives on the role of ultrasound in the skin assessment in Systemic Sclerosis. We appreciate her presence and participation in this interview.
About Dr. Tania Santiago: https://www.linkedin.com/in/t%C3%A2nia-santiago-2068793b/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress.
If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn, the links are available above.
https://www.linkedin.com/company/98578058/admin/feed/posts/
https://www.linkedin.com/company/eustar-org/
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series!
#prague2024 #SclerodermaResearch #SScWorldCongress #WorldSclerodermaFoundation #MedicalCongress #prague2024 -
Expert Insights – Prof. Thomas Krieg, WSF Secretary General & Professor University of Cologne
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this interview we have the privilege of introducing Prof. Thomas Krieg, WSF Secretary General and Full Professor of Dermatology at University of Cologne, Germany.
He will be interviewed by Dr. Francesco Bonomi a member of EUSTAR YIG (Young Investigators Group).
We are privileged to engage in a brief yet enlightening conversation with Professor Thomas Krieg who shares his invaluable insights on the WSF granting system. We extend our sincere appreciation to Thomas Krieg for his esteemed presence and active participation in this interview.
About Francesco Bonomi:
https://www.linkedin.com/in/francesco-bonomi-0a2966176/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn, the links are available above.
https://www.linkedin.com/company/98578058/admin/feed/posts/
https://www.linkedin.com/company/eustar-org/
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series!
#Prague2024 #SclerodermaResearch #SScWorldCongress #WorldSclerodermaFoundation #MedicalCongress #Prague2024 -
Expert Insights – Dr. Stefano Di Donato, EUSTAR Young Investigator Member
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this interview we have the privilege of introducing Dr. Stefano Di Donato, EUSTAR Young Investigator Member.
He will be interviewed by Dr. Veronica Batani, a member of EUSTAR YIG (Young Investigators Group).
We are privileged to engage in a brief yet enlightening conversation with Dr. Stefano Di Donato who shares his invaluable insights on on the potential role of cGAS/STING in Systemic Sclerosis.
About Stefano Di Donato:
https://www.linkedin.com/in/stefano-di-donato-631b5a196/
About Veronica Batani:
https://www.linkedin.com/in/veronica-batani-611a29203/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn, the links are available above.
https://www.linkedin.com/company/98578058/admin/feed/posts/
https://www.linkedin.com/company/eustar-org/
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series!
#Prague2024 #SclerodermaResearch #SScWorldCongress #WorldSclerodermaFoundation #MedicalCongress #Prague2024 -
Expert Insights – Prof. Yannick Allanore, University of Paris, Cochin Hospital, Paris
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this interview we have the privilege of introducing Prof. Yannick Allanore, Full Professor of Rheumatology at University of Paris, Cochin Hospital, Paris and Tresurer of the World Scleroderma Foundation.
He will be interviewed by Dr. Veronica Batani, a member of EUSTAR YIG (Young Investigators Group).
We are privileged to engage in a brief yet enlightening conversation with Professor Yannick Allanore, who shares his invaluable insights on the recommendations and treatment of Systemic Sclerosis. His expertise promises to offer a distinctive perspective, shedding light on crucial aspects of this condition. We extend our sincere appreciation to Professor Allanore for his esteemed presence and active participation in this interview.
About Professor Yannick Allanore:
https://www.linkedin.com/in/yannick-allanore-72ab23235/
About Veronica Batani:
https://www.linkedin.com/in/veronica-batani-611a29203/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn, the links are available above.
https://www.linkedin.com/company/98578058/admin/feed/posts/
https://www.linkedin.com/company/eustar-org/
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series!
#Prague2024 #SclerodermaResearch #SScWorldCongress #WorldSclerodermaFoundation #MedicalCongress #Prague2024 -
Interview with Ilaria Galetti: SSc Patient Advocate
Welcome to this special interview with Ilaria Galetti, an authoritative voice in the world of systemic sclerosis and representative of patients affected by this condition. Ilaria, thank you for being here with us today.
Question: Hello Ilaria, could you share with us some of your personal experience with systemic sclerosis and how you became involved in patient activism?
Ilaria: Certainly, thank you for the opportunity to share my story. I was diagnosed with systemic sclerosis several years ago, and since then, I have faced challenges and moments of growth. Being affected by this disease has driven me to seek information, support, and resources for myself and other patients. It was during this journey that I decided to become active in patient activism, to ensure that our voices are heard and our needs are considered.
Question: As a representative of systemic sclerosis patients, what are the main challenges you face and what are the primary goals you are pursuing?
Ilaria: The challenges we face as systemic sclerosis patients are multiple and complex. From managing daily symptoms to navigating the healthcare system, every day we encounter unique challenges. As patient representatives, our main goal is to ensure that our voices are heard and our needs are prioritized. We want to increase awareness of systemic sclerosis, promote research for new therapies, and improve access to treatments and care.
Question: What initiatives or activities are you undertaking to support the systemic sclerosis patient community?
Ilaria: Currently, I am involved in various initiatives aimed at supporting the systemic sclerosis patient community. I collaborate with organizations and associations to disseminate accurate information about the disease, organize educational events, and create support networks among patients. Additionally, I actively participate in awareness campaigns and advocacy efforts to ensure that our needs are represented at the political and healthcare levels.
Question: Finally, what advice would you like to share with other systemic sclerosis patients who may feel isolated or overwhelmed by the disease?
Ilaria: I would like to tell other systemic sclerosis patients to never feel alone. We are part of a strong and resilient community, ready to support each other along the way. Always seek support, information, and available resources, and do not hesitate to share your experiences with others. Together, we can face the challenges and work towards a better future for all of us.
Thank you again to Ilaria Galetti for her valuable testimony and her commitment to supporting the systemic sclerosis patient community. And Thanks to the World Scleroderma Foundation for the support to patients.
#Prague2024 #SclerodermaResearch #SScWorldCongress #WorldSclerodermaFoundation #MedicalCongress #Prague2024 #patientsupport -
Intervista con Ilaria Galetti: Voce dei Pazienti di Sclerosi Sistemica
Benvenuti a questa intervista speciale con Ilaria Galetti, una voce autorevole nel mondo della sclerosi sistemica e rappresentante dei pazienti affetti da questa condizione. Ilaria, grazie per essere qui con noi oggi.
Domanda: Ciao Ilaria, potresti condividere con noi un po' della tua esperienza personale con la sclerosi sistemica e come sei diventata coinvolta nell'attivismo per i pazienti?
Ilaria: Certo, grazie per l'opportunità di condividere la mia storia. Sono stata diagnosticata con la sclerosi sistemica diversi anni fa, e sin da allora ho affrontato sfide e momenti di crescita. Essere affetta da questa malattia mi ha spinto a cercare informazioni, sostegno e risorse per me stessa e per gli altri pazienti. È stato durante questo percorso che ho deciso di diventare attiva nell'ambito dell'attivismo per i pazienti, per garantire che le nostre voci siano ascoltate e che le nostre esigenze siano prese in considerazione.
Domanda: Come rappresentante dei pazienti di sclerosi sistemica, quali sono le principali sfide che affrontate e quali sono gli obiettivi principali che state perseguendo?
Ilaria: Le sfide che affrontiamo come pazienti di sclerosi sistemica sono molteplici e complesse. Dalla gestione dei sintomi quotidiani alla navigazione del sistema sanitario, ogni giorno ci troviamo di fronte a sfide uniche. Come rappresentante dei pazienti, il nostro obiettivo principale è garantire che le nostre voci siano ascoltate e che i nostri bisogni siano prioritari. Vogliamo aumentare la consapevolezza sulla sclerosi sistemica, promuovere la ricerca per nuove terapie e migliorare l'accesso ai trattamenti e alle cure. Ciò è reso possibile dal grande lavoro svolto dall'Italian World Scleroderma Foundation.
Domanda: Quali sono le iniziative o le attività che stai portando avanti per sostenere la comunità dei pazienti di sclerosi sistemica?
Ilaria: Attualmente sono coinvolta in diverse iniziative volte a sostenere la comunità dei pazienti di sclerosi sistemica. Collaboro con organizzazioni e associazioni per diffondere informazioni accurate sulla malattia, organizzare eventi educativi e creare reti di sostegno tra i pazienti. Inoltre, partecipo attivamente a campagne di sensibilizzazione e advocay per garantire che le nostre esigenze siano rappresentate a livello politico e sanitario.
Domanda: Infine, quali consigli vorresti condividere con altri pazienti di sclerosi sistemica che potrebbero sentirsi isolati o sopraffatti dalla malattia?
Ilaria: Vorrei dire agli altri pazienti di sclerosi sistemica di non sentirsi mai soli. Siamo parte di una comunità forte e resiliente, pronta a sostenerci reciprocamente lungo il percorso. Cerca sempre supporto, informazioni e risorse disponibili e non esitare a condividere le tue esperienze con gli altri. Insieme possiamo affrontare le sfide e lavorare per un futuro migliore per tutti noi.
Grazie ancora a Ilaria Galetti per la sua preziosa testimonianza e per il suo impegno nel sostenere la comunità dei pazienti di sclerosi sistemica. -
Intervista con la Dr.ssa Ramona Melis: infermiera di ricerca presso l'Università di Firenze
Il Cruciale Supporto della Formazione e Ricerca per Gli Health Professionals
È con grande piacere che vi presentiamo un'intervista esclusiva con la Dr.ssa Ramona Melis, infermiera di ricerca presso l'Università di Firenze. In questa conversazione illuminante, esploreremo l'importanza fondamentale del supporto offerto dall'Italian World Scleroderma Foundation alla formazione e alla ricerca degli health professionals, inclusi fisioterapisti ed infermieri.
La Dr.ssa Melis porta una prospettiva unica e preziosa alla nostra discussione, grazie alla sua vasta esperienza nel campo della ricerca clinica e alla sua dedizione nel migliorare la qualità della cura per i pazienti affetti da sclerodermia.
In particolare, esamineremo:
1️⃣ Il ruolo cruciale degli health professionals, inclusi i fisioterapisti ed infermieri, nella gestione e nel supporto dei pazienti affetti da sclerodermia.
2️⃣ L'importanza della formazione continua e della ricerca per migliorare le competenze e le pratiche cliniche di questi operatori sanitari, al fine di fornire una cura sempre più efficace e personalizzata.
3️⃣ Il sostegno prezioso fornito dall'Italian World Scleroderma Foundation attraverso programmi educativi, borse di studio e opportunità di ricerca per gli health professionals, contribuendo così a promuovere l'eccellenza nella cura dei pazienti affetti da sclerodermia.
Non perdete questa opportunità unica di conoscere da vicino l'impegno e la passione della Dr.ssa Ramona Melis nel promuovere la formazione e la ricerca nell'ambito della sclerodermia, in collaborazione con l'Italian World Scleroderma Foundation.
Stay tuned per l'intervista completa, dove scopriremo come insieme possiamo fare la differenza nella vita dei pazienti affetti da sclerodermia!
#Scleroderma #Ricerca #Formazione #HealthProfessionals #ItalianWorldSclerodermaFoundation -
Video testimonial – Prof. Dame Carol Black and Prof Marco Matucci Cerinic
Join us for this interview in which we take a deep dive into the personal journey and professional insights of Professor Dame Carol Black, a dedicated advocate in the fight against scleroderma. Through poignant questions and pivotal moments that shaped her commitment to fighting this difficult disease and driving positive change in the field, you'll hear how:
Prof. Dame Carol Black recounts her initial encounter with the disease and the profound impact it had on her career trajectory. Learn about their motivations and the defining moments that inspired them to embark on this mission.
Prof. Dame Carol Black and Prof. Marco Matucci Cerinic share their personal significance of being the voice and face of this vital cause. How this responsibility influences their daily lives and shapes their vision for the future of scleroderma advocacy and research.
Prof. Dame Carol Black emphasizes the importance of people from all walks of life joining forces to contribute to the cause, highlighting how every small action can have a significant impact.
In this interview you can explore the past, present and future of scleroderma advocacy and research through the eyes of Prof. Dame Carol Black and Prof. Marco Matucci Cerinic, passionate advocates for change.
#Prague2024 #SclerodermaResearch #SScWorldCongress #WorldSclerodermaFoundation #MedicalCongress #Prague2024 -
Opening Ceremony Prof Matucci Cerinic - WSF & EUSTAR Anniversary 2023 - full version
Opening Ceremony full version
Introduction Prof. Marco Matucci Cerinic
Managing Director WSF and procurator movie production Max Angotti Film
Esmeralda Recaldé
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soundtrack
Artist Christoffer Moe Ditlevsen, Hanna Ekström, Anna Dager
title: Adherence
production movie
MAX ANGOTTI Morgana Produzioni -
Welcome to the 8th Systemic Sclerosis World Congress in Prague!
Distinguished guests, esteemed colleagues, and friends from around the globe, it is with great pleasure and honor that we gather here today for the commencement of the 8th Systemic Sclerosis World Congress.
Under the auspices of the World Scleroderma Foundation, it is our privilege to bring together experts, researchers, healthcare professionals, and advocates to advance the dialogue and knowledge surrounding systemic sclerosis.
We are deeply honored to have Professor Matucci Cerinic, President of the World Scleroderma Foundation, leading us in the inauguration of this momentous event. Professor Cerinic's unwavering dedication to the field of scleroderma research and patient care serves as an inspiration to us all.
As we embark on this congress, let us embrace the spirit of collaboration, innovation, and compassion. Over the next few days, we will delve into the latest advancements in research, explore new treatment modalities, and exchange invaluable insights to enhance our understanding and management of systemic sclerosis.
Together, we have the power to make a meaningful impact on the lives of those affected by this complex disease. Let us seize this opportunity to forge new partnerships, ignite discussions, and pave the way for a brighter future for individuals living with systemic sclerosis worldwide.
On behalf of the organizing committee, I extend my heartfelt gratitude to each and every one of you for your participation and contributions to this congress. May our time together be enriching, enlightening, and transformative.
Welcome to the 8th Systemic Sclerosis World Congress in Prague! Let the journey begin.
#Prague2024 #SclerodermaResearch #SScWorldCongress #WorldSclerodermaFoundation #MedicalCongress -
Expert Insights – Prof. Marie Elise Truchetet, EUSTAR Vice-President
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this foverview we have the privilege of introducing Prof. Marie- Elise Truchetet, Professor of Rheumatology at Centre Hospitalier Universitaire Bordeaux and EUSTAR Vice- President. She will be interviewed by Dr. Antonio Tonutti a member of EUSTAR YIG (Young Investigators Group).
In this short but insightful conversation, Professor Marie - Elise Truchetet will provide us with a unique perspectives on unmet needs and future perspectives of diagestic involvement in Systemic Sclerosis. We appreciate her presence and participation in this interview.
About Professor Marie- Elise Truchetet:
https://www.linkedin.com/in/marie-elise-truchetet-a4310647/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn:
https://www.linkedin.com/company/98578058/admin/feed/posts/
https://www.linkedin.com/company/eustar-org/
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series! -
Expert Insights WSC24– Prof. Jorg Distler from Heinrich-Heine-Universität Düsseldorf
Welcome to our series of brief interviews during the 8th Systemic Sclerosis World Congress in Prague with experts in Scleroderma and Rheumatology! In this interview we have the privilege of introducing Prof. Jorg Distler Full Professor of Rheumatology at Heinrich-Heine-Universität Düsseldorf, Germany. He will be interviewed by Dr. Veronica Batani, a member of EUSTAR YIG (Young Investigators Group).
In this short but insightful conversation, Professor Jorg Distler will provide us with a unique perspective on durable remission on Systemic Sclerosis today. We appreciate his presence and participation in this interview.
About Professor Jorg Distler:
https://www.medizin.hhu.de/news-detailinformation/prof-dr-joerg-distler-ernannt#:~:text=Universit%C3%A4t%20D%C3%BCsseldorf%20Prof.-,Dr.,des%20Hiller%2D%E2%80%8BForschungszentrums%20verbunden.
About Veronica Batani: https://www.linkedin.com/in/veronica-batani-611a29203/
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #SScWorldCongress. If you'd like to learn more about the World Scleroderma Foundation or EUSTAR connect with our guests on LinkedIn:
https://www.linkedin.com/company/98578058/admin/feed/posts/
https://www.linkedin.com/company/eustar-org/
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series! -
World Scleroderma Foundation anniversary & World Congress inauguration
Welcome to our captivating journey through the history of the World Scleroderma Foundation, marking its inception and commemorating its transformative journey leading up to the remarkable milestone of its 10th anniversary. Join us as we explore the global impact of the foundation, from its humble beginnings to its current status as a beacon of support and advocacy for those affected by scleroderma worldwide.
In addition, we celebrate the 20th anniversary of EUSTAR, the European League Against Rheumatism (EULAR) Scleroderma Trials and Research group. Through two decades of collaborative research and dedication, EUSTAR has played a pivotal role in shaping scleroderma treatment and care across Europe and beyond, enriching the lives of countless individuals.
Furthermore, we highlight the creation of the Journal of Scleroderma Related Disorders, a groundbreaking publication dedicated to advancing scientific understanding and clinical practice in the realm of scleroderma and related disorders. This journal serves as a vital resource for researchers, clinicians, and patients alike, fostering dialogue and driving progress in the ongoing fight against scleroderma.
Join us as we pay tribute to these significant milestones, honoring the tireless efforts of individuals who have dedicated themselves to the scleroderma cause. Together, let us look forward with hope and determination to a future where scleroderma is no longer a burden on those it affects. #eustar #marcomatuccicerinic #jsrd #SclerodermaResearch #SScWorldCongress #WorldSclerodermaFoundation #MedicalCongress #Prague2024 -
Expert Insights - Marco Matucci Cerinic from WSF
Welcome to our series of brief interviews with experts in Scleroderma and Rheumatology!
In this first overview Francesco Bonomi has the privilege of introducing Marco Matucci Cerinic, President of the World Scleroderma Foundation (WSF) and Full Professor of Rheumatology at San Raffaele Hospital, Milan, Italy.
In this short but insightful conversation, Professor Matucci Cerinic will provide us with a unique perspective on Scleroderma and its significance in rheumatology. He will also explain why events like this are held and their importance in the medical community. We appreciate his presence and participation in this interview.
About Marco Matucci Cerinic:
- WSF Website: https://worldsclerofound.org/
- Marco Matucci Cerinic's LinkedIn Profile: linkedin.com/in/prof-marco-matucci-cerinic-b45ab2209
About Francesco Bonomi:
- Francesco Bonomi's LinkedIn Profile: linkedin.com/in/francesco-bonomi-0a2966176
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #ACR23. If you'd like to learn more about the World Scleroderma Foundation or connect with our guests on LinkedIn, the links are available above.
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series! -
Expert Insights - Yannick Allanore from WSF
Welcome to our series of brief interviews with experts in Scleroderma and Rheumatology!
In this first overview we have the privilege of introducing @Yannick Allanore, Treasurer of the World Scleroderma Foundation (WSF) and Full Professor of Rheumatology at Cochin Hospital in Paris. He will be interviewed by Corrado Campochiaro, a Eustar Counsellor #ACR23
About Yannick Allanore:
linkedin.com/in/yannick-allanore-72ab23235
WSF Website: https://worldsclerofound.org/
About Corrado Campochiaro:
linkedin.com/in/corrado-campochiaro-90985711a
Don't miss this concise yet fascinating discussion that marks the beginning of our interviews during #ACR23. If you'd like to learn more about the World Scleroderma Foundation or connect with our guests on LinkedIn, the links are available above.
We hope you enjoy the interview, and we invite you to subscribe for future events of our expert insights series! -
Expert Insights - Oliver Distler
Welcome to our Expert Insights series, where we bring you concise yet incredibly informative interviews with experts in the field. In this episode, Corrado Campochiaro, EUSTAR Counsellor, takes the lead as he interviewed Oliver Distler.
In just a few minutes, gain invaluable insights as Oliver Distler shares his expertise on New ACR-ILD recommendations. Discover the latest developments, guided by one of the leading figures in the industry.
About Oliver Distler:
- Connect with Oliver Distler on LinkedIn: linkedin.com/in/oliver-distler-b18162a7
About Corrado Campochiaro:
- Connect with Corrado Campochiaro on LinkedIn: linkedin.com/in/corrado-campochiaro-90985711a
Don't miss this concise yet essential discussion that keeps you well-informed and at the forefront of crucial insights. If you want to learn more about Oliver Distler or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #Scleroderma #MedicalResearch #ACR23 -
Expert Insights - Zsuzsanna McMahan on WSF Working Group
Welcome to our Expert Insights series, where we bring you concise yet incredibly informative interviews with experts in the field.
In this episode, Francesco Bonomi, EUSTAR YIG Member, takes the lead as he interviews Zsuzsanna McMahan.
In just a few minutes, gain invaluable insights as Zsuzsanna McMahan shares her expertise on the WSF Working Group.. Discover the latest developments, guided by one of the leading figures in the WSF/EUSTAR Group.
About Zsuzsanna McMahan:
Connect with Zsuzsanna McMahan on LinkedIn: linkedin.com/in/zsuzsanna-mcmahan-5170734
About Frasncesco Bonomi:
Connect with Blaz Burja on LinkedIn: linkedin.com/in/francesco-bonomi-0a2966176
Don't miss this concise yet essential discussion that keeps you well-informed and at the forefront of crucial insights. If you want to learn more about Zsuzsanna McMahan or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #Scleroderma #MedicalResearch #ACR23 -
Expert Insights - Anna Maria Hoffmann-Vold study SSC-ILD
Welcome to our Expert Insights series, where we bring you concise yet incredibly informative interviews with experts in the field. In this episode, Devis Benfaremodi, an EUSTAR YIG Member, takes the lead as he interviews Anna Maria Hoffmann-Vold, University of Oslo.
In just a few minutes, gain invaluable insights as Anna Maria Hoffmann-Vold shares her expertise on the study SSC-ILD . Explore the latest comparisons and analyses, guided by one of the leading experts in the field.
About Anna Maria Hoffmann-Vold:
Connect with Anna Maria Hoffmann-Vold on LinkedIn: linkedin.com/in/anna-maria-hoffmann-vold-aa347527
Don't miss this concise yet essential discussion that keeps you well-informed and at the forefront of crucial insights. If you want to learn more about Anna Maria Hoffman-Vold or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #Scleroderma #MedicalResearch #ACR23 -
Expert Insights - Cosimo Bruni on Analisi EUSTAR nel confronto tra ILD incident and ILD prevalent
Welcome to our Expert Insights series, where we bring you concise yet incredibly informative interviews with experts in the field. In this episode, Devis Benfaremodi, an EUSTAR YIG Member, takes the lead as he interviews Cosimo Bruni, another EUSTAR YIG Member.
In just a few minutes, gain invaluable insights as Cosimo Bruni shares his expertise on Analisi EUSTAR nel confronto tra ILD incident and ILD prevalent. Explore the latest comparisons and analyses, guided by one of the leading experts in the field.
About Cosimo Bruni:
Connect with Cosimo Bruni on LinkedIn: linkedin.com/in/cosimo-bruni-35a442123
Don't miss this concise yet essential discussion that keeps you well-informed and at the forefront of crucial insights. If you want to learn more about Cosimo Bruni or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #Scleroderma #MedicalResearch #ACR23 -
Expert Insights - Jorg Distler on Organoid Approaches to Studying Scleroderma Skin and Lungs
Welcome to our Expert Insights series, where we bring you concise yet incredibly informative interviews with experts in the field. In this episode, Blaz Burja, an EUSTAR YIG Member, steps into the role of interviewer as he engages in a brief discussion with Jorg Distler.
In just a few minutes, gain invaluable insights as Jorg Distler shares the latest developments in Organoid Approaches to Studying Scleroderma Skin and Lungs. Stay informed about cutting-edge research and innovative approaches, guided by one of the leading experts in the field.
About Blaz Burja:
Connect with Blaz Burja on LinkedIn: linkedin.com/in/blazburja
Don't miss this concise yet essential discussion that keeps you well-informed and at the forefront of critical insights. If you want to learn more about Jorg Distler or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #Scleroderma #MedicalResearch #ACR23 -
Expert Insights - Treatment Patterns in SSc-ILD: EUSTAR Analysis
Welcome to our Expert Insights series, where we bring you brief yet highly informative interviews with experts in the field. In this episode, Cristina Maglio, a member of EUSTAR YIG, takes the lead as she interviews Corrado Campochiaro.
In just a few minutes, gain invaluable insights as Corrado Campochiaro sheds light on Treatment Patterns in Systemic Sclerosis-Interstitial Lung Disease (SSc-ILD) based on EUSTAR's analysis.
About Corrado Campochiaro:
Connect with Corrado Campochiaro on LinkedIn: linkedin.com/in/corrado-campochiaro-90985711a
About Cristina Maglio:
Connect with Cristina Maglio on LinkedIn: linkedin.com/in/cristina-maglio-996078239
Don't miss this brief yet essential discussion that keeps you well-informed and at the forefront of crucial insights. If you want to learn more about Corrado Campochiaro or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #EUSTAR #MedicalResearch #ACR23 -
Expert Insights - Masataka Kuwana on News from the Journal of Scleroderma Related Disorders
Welcome to our Expert Insights series, where we bring you concise yet incredibly informative interviews with experts in the field. In this episode, Cosimo Bruni, an EUSTAR YIG Member, steps into the role of interviewer as he engages in a brief discussion with Masataka Kuwana.
In just a few minutes, gain invaluable insights as Masataka Kuwana shares the latest updates from the Journal of Scleroderma Related Disorders. Stay informed about the most recent developments, guided by a leading expert in the field.
About Masataka Kuwana:
Connect with Masataka Kuwana on LinkedIn: linkedin.com/in/masataka-kuwana-436b87108
About Cosimo Bruni:
Connect with Cosimo Bruni on LinkedIn: linkedin.com/in/cosimo-bruni-35a442123
Don't miss this concise yet essential discussion that keeps you well-informed and at the forefront of critical insights. If you want to learn more about Masataka Kuwana or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #Scleroderma #MedicalResearch #ACR23 -
Expert Insights - Francesco Del Galdo, President of EUSTAR
Welcome to our Expert Insights series, where we bring you brief yet impactful interviews with notable figures in the field.
In this episode, Corrado Campochiaro, EUSTAR Counselor, has the privilege of interviewing Francesco Del Galdo, President of EUSTAR. In this concise but highly informative exchange, Francesco Del Galdo shares valuable insights on a topic of significance.
About Francesco Del Galdo
Connect with Francesco Del Galdo on LinkedIn: linkedin.com/in/francesco-del-galdo-87a65538
About Corrado Campochiaro
Connect with Corrado Campochiaro on LinkedIn: linkedin.com/in/corrado-campochiaro-90985711a
Don't miss this quick but essential discussion that keeps you well-informed and at the forefront of key insights. If you want to learn more about Francesco Del Galdo or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #EUSTAR #MedicalLeadership #ACR23 -
Expert Insights - Marie Elise Truchetet, EUSTAR Vice-President
Welcome to our Expert Insights series, where we bring you concise yet incredibly informative interviews with experts in the field. In this episode, Blaz Burja, an EUSTAR YIG Member, takes the lead as he interviews Marie Elise Truchetet, EUSTAR Vice-President.
In just a few minutes, gain invaluable insights as Marie Elise Truchetet shares her expertise in the field. Discover the latest developments, guided by one of the leading figures in the industry.
About Marie Elise Truchetet:
- Connect with Marie Elise Truchetet on LinkedIn: linkedin.com/in/marie-elise-truchetet-a4310647
About Blaz Burja:
- Connect with Blaz Burja on LinkedIn: linkedin.com/in/blazburja
Don't miss this brief yet essential discussion that keeps you well-informed and at the forefront of crucial insights. If you want to learn more about Marie Elise Truchetet or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #EUSTAR #ACR23 -
Expert Insights - Christopher Denton on FT011 for the Treatment of Systemic Sclerosis
Welcome to our Expert Insights series, where we bring you brief and insightful interviews with prominent experts in the field. In this episode, Francesco Bonomi, EUSTAR YIG Member, engages in a captivating conversation with Christopher Denton.
Christopher Denton, a leading expert in the field, discusses the topic of FT011 for the Treatment of Systemic Sclerosis, sharing the latest results from a Phase II Study. Join us as we explore the innovative approach and groundbreaking insights that this treatment promises.
About Francesco Bonomi:
- Connect with Francesco Bonomi on LinkedIn
Don't miss this enlightening discussion that keeps you informed and at the forefront of the latest developments in Systemic Sclerosis treatment. If you want to learn more about Christopher Denton or connect with our guests on LinkedIn, the links are available above.
Stay tuned for more Expert Insights and subscribe to our channel to stay informed and ahead in the field. 🚀 #ExpertInsights #SystemicSclerosis #FT011Treatment -
WSF & EUSTAR Anniversary 2023 - EUSTAR & WSF History and Contribution - The pillars of Scleroderma
Professor Piet van Riel and Mrs. Sue Farrington, presents Prof. Dame Carol Black onpening lecture on the pillars of Scleroderma at the WSF & EUSTAR Anniversary event 2023 held in Milano. -
Opening Ceremony Prof Matucci Cerinic - WSF & EUSTAR Anniversary 2023
Prof Marco Matucci Cerinic, WSF President, presents the Opening Ceremony of the WSF & EUSTAR Anniversary 2023 at Museo Nazionale della Scienza e della Tecnologia in Milano -
WSF & EUSTAR Anniversary - Gala Event 2023
Prof. Marco Matucci Cerinic, WSF chairman, & Prof. Francesco Del Galdo, EUSTAR President, presents the WSF & EUSTAR gala event 2023 at the Museo Scienza e Tecnologia Leonardo Da Vinci in Milano.
Prof Dame Carol Black, Sue Farrington, Piet van Riel, Dan Furst, Yannick Allanore,Thomas Krieg, Marie Elise Truchetet, Madelon Vonk, Maria Grazia Lazzaroni, Corrado Campochiaro,Michael Hughes, Tania Santiago, Laszlo Czirjak, Ulf Muller Ladner, Dinesh Khanna, Masataka Kuwana, Irina Khodossevitch, Esmeralda Recalde Leon -
EULAR23 - Prof Francesco Del Galdo Interview
Dr Shiri Keret, EUSTAR Young Investigator Member, interview Prof Francesco Del Galdo EUSTAR President on updates of EULAR reccomentations for treatment of SSc -
EULAR23- Dr. Anna Maria Hoffman-Vold interview
Dr Flavio Campos Costa, EUSTAR Young Invetigator Member, interview at Dr. Anna Hoffmann-Vold during EULAR2023 -
EULAR23 - Prof Oliver Distler interview
Dr. Christina Bergmann, EUSTAR Young Investigator Member, interview Prof Oliver Distler on lung involvement in autoimmune rheumatic diseases -
EULAR23- Prof Madelon Vonk interview
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EULAR23- Prof Francesco Del Galdo interview
Dr. Nicola Farina, EUSTAR Young Investigator, interview Prof. Francesco Del Galdo on the PAESC project -
EULAR23- Prof. Marie Elise Truchetet interview
Dr. Claudia Coblinschi, EUSTAR Young Investigator Member , interview Prof Marie Elise Truchetet EUSTAR Vice-President -
EULAR23 - Prof Daniel Furst interview
Dr. Chiara Bellocchi , EUSTAR Young Investigator , interview Prof Daniel Furst -
EULAR23- Prof Matucci Cerinic interview
Dr. Cosimo Bruni, EUSTAR Young Investigator Member, interview Prof Matucci Cerinic on the 10th year’s anniversary of WSF and the news for young investigators -
EULAR23 - Dr Cosimo Bruni interview
Dr. Russaka Shumnalieva, EUSTAR Young Investigaator ember, interview to Dr. Cosimo Bruni -
EULAR23 - Prof Yannick Allanore interview
Dr. Devis Benfaremo , EUSTAR Young Investigator member, interview at Prof Yannick Allanore in “ updates in the treatment with nintedanib in patients wth SSc - ILD : three-years data from SENSCIS” at EULAR2023 -
ACR22-Prof. Dan Furst interview
Dr. Alessandro Tomelleri, EUSTAR Young Investigator Member, interview at Prof Daniel Furst on: “Rituximab versus Cyclophosphamide” – ACR Congress 2022 -
ACR22 - Prof Yannick Allanore interview
Dr. Maria Grazia Lazzaroni, EUSTAR Councellor, interview at Prof. Yannick Allanore on: “ABS 1531: Three-Year Data from SENSCIS-ON” -
ACR22 - Prof Dinesh Khanna Interview
Dr. Corrado Campochiaro, EUSTAR Councellor, interview at Prof. Dinesh Khanna on: “ SLS3 study” – ACR Congress 2022 -
ACR22- Dr. Anna Hoffmann-Vold interview
Dr. Alessandro Tomelleri, EUSTAR Young Investigator Member, interview at Prof . Anna Hoffmann-Vold on: “ Cohort Enrichment Strategies for Progressive Interstitial Lung Disease in Systemic Sclerosis from EUSTAR” – ACR Congress 2022 -
ACR22 - Prof. Christopher Denton interview
Dr. Corrado Campochiaro, EUSTAR Councellor, interview at Prof Denton on: “Targeting B cells” – ACR Congress 2022 -
ACR22- Prof. Daniel Furst Interview
Dr. Alessandro Tomelleri, EUSTAR Young Investigator Member, Interview at Prof. Daniel Furst on the relationship between the WSF and EUSTAR -
ACR22 - Prof. Francesco Del Galdo Interview
Dr. Maria Grazia Lazzaroni, EUSTAR Councellor, interview at Prof Francesco Del Galdo on: “ Highlights of the Bio VEDOSS” – ACR Congress 2022 -
ACR22- Prof. Francesco Del Galdo Interview
Dr. Maria Grazia Lazzaroni, EUSTAR Councellor, interview at Prof Francesco Del Galdo, EUSTAR President on: “ Ranked Composite Important Difference in Diffuse Cutaneous Systemic Sclerosis” – ACR Congress 2022
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